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Research to Bridge the Heart Gap with First Nations Families πŸ’“
Matthew Hooke Matthew Hooke

Research to Bridge the Heart Gap with First Nations Families πŸ’“

First Nations families are helping shape a new model of paediatric cardiac care through Bridging the Heart Gap, a groundbreaking program designed to deliver more timely and culturally safe treatment closer to home.

Led by the Queensland Children’s Hospital cardiac team and supported by nearly $2 million in MRFF funding, the initiative partners with communities in Far North Queensland and Western Australia to co-design care pathways grounded in trust, cultural connection, and equity.

πŸ’‘ Learn more about how Bridging the Heart Gap is transforming care for First Nations children and families across Australia here.

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Celebrating Rare Disease Day 2025: A Movement for Change
Matthew Hooke Matthew Hooke

Celebrating Rare Disease Day 2025: A Movement for Change

Rare Disease Day 2025 at Child UnLimited: Voices for Change! Join us as we reflect on an unforgettable Rare Disease Day, where families, researchers, and advocates gathered to amplify the challenges and triumphs in rare disease care. Dive into how we're working together to bring about transformative healthcare policies and support systems. This is just the beginning of a movement where every voice counts. Read more about our collective journey here. πŸ’œπŸŒŸ

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New Partnership: Luminesce Alliance Psychosocial Enabling Platform
Matthew Hooke Matthew Hooke

New Partnership: Luminesce Alliance Psychosocial Enabling Platform

🌟 Exciting Collaboration Alert: Luminesce Alliance Partnership! Child UnLimited is thrilled to announce our new partnership with Luminesce Alliance to enhance the Psychosocial Enabling Platform. This collaboration leverages our consumer engagement expertise to shape research that addresses the psychosocial impacts of precision medicine on children and their families. Discover how this partnership will transform care and support systems, ensuring that family and patient voices lead the way in healthcare innovations. πŸ§¬πŸ’‘ Learn more about our joint efforts and the future of personalised medicine here.

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The Child UnLimited Parliamentary Launch
Cat Nguyen Cat Nguyen

The Child UnLimited Parliamentary Launch

πŸ›οΈ Unveiling Change at Parliament House! On September 11th, Child UnLimited made a pivotal stride towards change at our Parliamentary Launch. Joined by Dr. Mike Freelander MP, Dr. Monique Ryan MP, and other key figures, we highlighted the critical whole-of-life challenges children with chronic illnesses face. Discover the impactful stories from our consumer network and delve into the dynamic panel discussion on mental health, rural healthcare, and transitioning care from childhood to adulthood. πŸ”πŸ’¬ Read more about this transformative event here.

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Child UnLimited Releases Consumer Workshop Report: Amplifying Voices in Chronic Illness Care
Belinda Cooper Belinda Cooper

Child UnLimited Releases Consumer Workshop Report: Amplifying Voices in Chronic Illness Care

🌟 New Insights from Our Consumer Workshop! Dive into the powerful outcomes from Child UnLimited's latest Consumer Workshop, where families and experts united to reshape chronic illness care. Explore how we're advocating for enhanced communication, mental health support, and equitable care systems. Learn more about our holistic approach to healthcare that goes beyond treatment to truly support families. πŸŒˆπŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘¦ Read the full report detailing how we plan to transform healthcare for the better.

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