Bridging the Heart Gap: Building Partnerships to Improve Paediatric Cardiac Surgery Care Equity

Bridging the Heart Gap is a consumer- and clinician-led research initiative focused on improving equity in paediatric cardiac surgery for Aboriginal and Torres Strait Islander children living in rural and remote Queensland and Western Australia. These children often face distressing travel to distant cities like Brisbane or Perth for critical heart surgery, procedures that are not only time-sensitive but deeply traumatic when delivered in unfamiliar, disconnected settings.

This project recognises that trust, cultural safety, and continuity of care are critical. Our vision is to ensure timely, equitable access to the best care for First Nations children, families, and communities needing cardiac surgery.

With strong roots in community partnerships, the project is co-designed with families, local clinicians, and Elders. It builds on a successful pilot led by Queensland Children’s Hospital that used telehealth and early engagement on country to ease transitions into hospital care. The approach not only improved health outcomes but helped reduce fear and mistrust, laying a foundation for sustainable, scalable change.

Why It Matters

  • First Nations children are significantly overrepresented in the paediatric cardiac surgery population, primarily due to conditions such as congenital and rheumatic heart disease.

  • Around 15% of cardiac surgery patients at Queensland Children’s Hospital identify as Aboriginal or Torres Strait Islander—40% of whom are from Far North Queensland.

  • Families report distress, disconnection, and delays when required to leave community for care without proper cultural and emotional support.

The Bridging the Heart Gap program works to change the system, not the child—embedding trust-building and community voice into every level of service design and delivery.

Healing Hearts, Honouring Culture

Our Aims

  1. Develop a partnership model of care that enables culturally appropriate, personalised support for each child, family, and health service.

  2. Implement this model across regional and metropolitan health systems in Queensland and Western Australia.

  3. Evaluate the model’s effectiveness to inform wider adoption across Australia’s health services.

Stories from Country

From Monique in Mareeba, whose journey from fear to empowerment inspired her to pursue a nursing career—to Baby Sonya returning to Country after her second surgery, these stories embody the heart of the project: healing through respect, collaboration, and culture.

Project Leads & Partners

Principal Investigators include:

Dr Prem Venugopal, Dr Jason King, Prof Amanda Ullman, Ms Jennifer Orchard, Prof Raghu Lingam, and others.

Partner Organisations:

  • University of Queensland

  • Children’s Health Queensland

  • Perth Children’s Hospital

Funded by:

The NHMRC’s Medical Research Future Fund (MRFF) under the Cardiovascular Health Mission Grant (2023–2026).

Resources & Contact

For resources and project materials including the study protocol contact:

  • A/Prof Dr Prem Venugopal – p.venugopal@uq.edu.au

  • Jennifer Orchard – jennifer.orchard@health.qld.gov.au

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