Our Mission
Helping children with chronic illness and disability live their best lives.
CHILDHOOD CHRONIC ILLNESS
1 in 5 Australian children are living with chronic illness. Their life course is not the same as that of children without chronic illness.
These children and their families face many problems every day - poor physical health and school achievement, disrupted social networks, significant distress and financial toxicity.
Medical advances across paediatrics mean that children with previous incurable diseases are now surviving to adulthood. This success has created a new challenge: the health system is overloaded managing long term, chronic conditions.
There is a substantial gap in life attainment, mental and physical health when children with chronic illness enter adulthood.
Technical and knowledge advances in this digital and genomic age mean we can better predict and manage these whole-of-child problems.
Current Challenges & Opportunities
Our Goals
Create national consumer groups to guide and inform our work.
Assess the impact of chronic disease, variance in outcomes and models of care.
Improve current models of care to enable simpler clinical management.
Ensure the cost effectiveness of the new models of care.
Provide better and more tailored support for children and their families.
Improve educational services for children who miss school due to chronic illness.
